Webliography for Age-related Macular Degeneration (AMD)
March is National Age-related Macular Degeneration (AMD) month. Macular degeneration is the leading cause of blindness for people over 60 years of age. AMD can present itself in two different forms: wet and dry. Dry AMD is the most common type of macular degeneration. Wet AMD is diagnosed in only about ten percent of the people with macular degeneration. Wet AMD is a more serious condition than dry AMD.
Macular degeneration affects the macula. The macula is the part of the eye that is responsible for a person’s center or “fine” vision. The macula is what one uses to thread a needle or read a paper, and even to see colors. A person usually exhibits dry AMD, gradually, in one eye and the condition slowly progresses and eventually the second eye is affected. A person with AMD may see objects as fuzzy. Lines that are straight will look wavy. This affects center vision only. Peripheral vision is not affected by this condition. Wet AMD involves bleeding in the eye. It is an acute condition and can immediately affect the visual acuity of the involved eye.
Heredity is one of the risk factors for AMD, which is why this condition is of interest me. Many years ago my grandmother was diagnosed with dry macular degeneration. She was a vibrant and active woman who became limited by the loss of her central vision. It started when the print in books had to be in bigger font, then she relinquished her driver’s license, and the condition progressed until she went to books on tape and to listening to her favorite television shows.
My father was diagnosed with dry macular degeneration over a year ago. Every spring my father and mother travel to Southern Texas for a month or two. This year my father stated it might be the last time they travel down south due to his center vision changes. He said he would make the final decision next fall. He tests himself every day for visual acuity changes and realizes the day will come that he will have to retire his driver’s license. He is not looking forward to that day.
AMD is hereditary and more prone to affect females than males. It occurs more often in Caucasians and people with light colored eyes. Others factors are weight, smoking, and intake of antioxidants. My grandmother was blue eyed and a smoker. My father is blue eyed. It is a concern. I have two siblings that are blue eyed and one is female and is overweight and smokes occasionally. This is why I chose this topic for my webliography.
In 1985 I worked for an ophthalmologist. I used to test people for macular degeneration. We used to use the Amsler grid. This is a straight-lined grid with a dot in the middle. A person covers one eye and focuses on the dot. Someone with macular degeneration will see wavy lines in the center of the grid or may see a fuzzy spot in the middle of the grid in advanced cases. This simple grid is sent home with people to check their visual acuity, one eye at a time, at least one time per week. I have also worked with a retinal surgeon. I have seen the drusen (yellow spots) on the macula that indicate the early to intermediate stages of dry macular degeneration.
So go get an eye exam to celebrate Age-related Macular Degeneration month. Pupillary dilatation should be included with this exam so that the retina may be examined. If you have family members with AMD or know someone with AMD I hope you forward these web links to them. They can research their own disease process and find contact people at the same time.
AMD Awareness Organization
http://www.amdawareness.org
This website lists controllable and uncontrollable risk factors for AMD. This site also has a link to find a retinal specialist in your area.
Eye on AMD
http://www.eyeonamd.com/EyeonAMD/index
This site is really neat. It has an AMD online seminar so people can watch this to learn more about the disease. It also has a link to tour a low vision home. You can click on a room and it will give you tips on how to adapt your house to your reduced vision, i.e. floating a colorful item in a tub to monitor how much water has filled the bathtub. One can find local eye seminars and find support groups.
Macular Degeneration Health
http://health.google.com/health/ref/Macular+degeneration
This is a good resource for treatments for both wet and dry AMD ranging from vitamin supplements to intraocular injections. The many tests for AMD can be found here. This site has links to prognosis, prevention, and complications.
Mayo Clinic reference for Macular Degeneration
http://www.mayoclinic.com/health/macular-degeneration
This site gives a great explanation of macular degeneration in laypersons terms. Symptoms are given in relatable example form. An in depth explanation of AMD and the natural aging of the macula are given. Easy to understand directions of how to use the Amsler grid and a PDF file download of the grid are available. This is the only site that gives a list of symptoms that includes hallucinations. It is a phenomenon known as Charles Bonnet Syndrome and is a symptom of severe AMD. This site is a great resource for a newly diagnosed AMD patient. The Mayo clinic provides a long list of causes and explanations and is the only site that provides tips for an early eye appointment. They give examples of questions to ask the doctor and gives examples of questions the doctor may ask them. The appointment prep section is a unique tool.
Macular Organization
http://www.macular.org
The macular organization has the usual definitions for wet and dry AMD. This site stands out for its links to clinical trials and to studies recruiting patients. The clinical trials site gives links to prior trial outcomes and also ongoing clinical trials. The recruiting site for patient studies lists the study requirements and then a link to apply as a participant.
This site has an animated video that explains wet and dry AMD. Other educational videos are available. There is a link to support groups and a link to an online bulletin board.
National Eye Institute on Macular Degeneration
http://www.nei.nih.gov/health/maculardegen/armd_facts.asp
This is the only site that offers the option of regular, medium, and large text size as part of their home page. Descriptions of wet and dry AMD are available with illustrations. One link leads to current research projects and another link offers frequently asked patient questions and then the answers.
Juvenile Macular Degeneration
http://www.maculardegeneration.org/juvlong.html
This site is sponsored by Macular Degeneration International. This website leads directly to the juvenile link rather than the homepage (which can be accessed from here). This site had an in depth explanation of juvenile macular degeneration. It’s actually named macular dystrophy in children and is very rare. Often the disease is misdiagnosed in children until it has advanced to a stage where the signs and symptoms lead to a diagnosis of macular dystrophy. Karl Stargardt first recorded signs and symptoms of this juvenile condition in 1909. The Stargardt gene was identified in 1991. This site offers studies and study results. This site is recommended for the person with a medical background. This site is not for the layperson.